Memoirs For Lupus Chicks
Originally seen on Lupus Chicks
Books are a source of comfort for many. Especially when spending so much time sick and unable to do much else, books can bring worlds of imagination, creativity, education, and take the reader to a whole new world away from pain. There are many books about how to deal with illness, but books on illness by actual warriors are harder to come by. Therefore, Lupus Chick is providing a list of books which describe the intimate details of chronic illness from a personal perspective.
Suffering The Silence, By Allie Cashel
This book is about chronic lyme, an often stigmatized, invalidated, and misdiagnosed infectious disease. In this book, Allie shares her personal story with chronic lyme disease which she was diagnosed with at the early age of seven. She also shares other lyme warrior’s stories. This heartfelt book helps break the stigma surrounding invisible illness by speaking about the symptoms, difficulties, and stigma that comes along with lyme disease and other invisible illnesses.
Most Of Me, By Robyn Michele Levy
Is a hilarious book on the suffering Robyn endures and the drastically different amount of support she got when she was diagnosed with Parkinson's, a degenerative disease, and later with breast cancer. Her sense of humor is uplifting and remarkable. As it already may be obvious, the book doesn’t have a happy ending, as Parkinson’s disease isn’t curable. Though, her humor is enough to bring a smile at the end of the book.
Laughing At My Nightmare, By Shane Burcaw
This bluntly honest book describes twenty-one-year-old Shane’s life with spinal muscular atrophy, a fatal disease. He handles his disease with much humor and giggles through his book and outreach. Although his humor is uplifting, some of the content is rough and contains graphic details. The lighter of them being "I try not to laugh since my bladder is on the verge of exploding after seventeen hours of driving down the east coast of the United States". At his book signing, Shane wore lipstick and kissed each book in signature as an alternative for signing his signature with his dysfunctional hand.
Front Of The Class, By Brad Cohen
This phenomenal book describing Brad Cohen’s childhood with Tourette's syndrome was so well liked it that it became a motion picture. You may have seen the description of the movie in a previous article on Lupus Chick, here we will provide further information on the book and the movie. Brad’s Tourette’s was seen as hypochondria, malingering, and attention seeking. This resulted in bullying by teachers and students alike. As he grew up he learned what type of person he didn’t want to be, and became a loving teacher, very different from the one he had. This book is inspirational and humorous. The 2005 edition ends with motivational tips on living with a disability.
These four books are especially relatable because the author’s themselves suffer from illnesses. To save money on purchasing them try borrowing from your local library or see if your city library has a website with available e-books to borrow. Amazon and eBay are also good options.